Follow Me


"I’m not going to lie, Alzheimer’s is hard. But there are ways to make it easier for you and your grandparent. Through learning as much as you can about Alzheimer’s, you can gain special skills to better connect with your grandparent. Over the years, my Grandma Mary Fran’s case got worse, but my relationship with her only grew stronger. Alzheimer’s gave me more strength, patience, and compassion than I could ever imagine. And I challenge you to do the same.  I hope this workbook guides you through this journey."

Part Two is geared toward any adults involved in the learning process. School teachers, support group leaders, and parents can use this resource to find out more about how best to support a child caregiver. Furthermore, they can use the ideas incorporated into both parts of Alz4Kidz to develop lesson plans or talking points to use both in and out of the classroom.

Request your copy here


Alissa's story

Throughout her childhood, Alissa's Grandma Mary Fran had Alzheimer's disease. While growing up, Alissa realized that the Alzheimer's community lacked a voice for what she calls the forgotten generation of Alzheimer's: the child caregivers. Since then, she has become one of the nation's leading young Alzheimer’s advocates, inspiring people across the country with her personal story and mission to empower other young caregivers. Her story has been featured in the Emmy-winning HBO documentary The Alzheimer’s Project, the TV show Young Icons, Maria Shriver’s Wipe Out Alzheimer’s Challenge national campaign, AOL/Huffington Post, National Public Radio, the Alzheimer’s Association Annual Report, her national keynote speaking tour, and her contribution to the publications The Shriver Report: A Woman’s Nation Takes on Alzheimer’s and Alzheimer’s in America, among others. 

Women's alzheimer's movement

​​Alissa has been chosen as a woman's leader of the new national campaign, Maria Shriver's Women's Alzheimer's Movement in partnership with the Alzheimer's Association, My Brain, and A Woman's Nation, whose book she was a contributing author for in 2010. Alissa and leading advocates including Anne Romney, Brooke Shields, Shonda Rhimes and Senator Barbara Mikulski are featured as the "inspirational women who have stood on the front lines of the fight against Alzheimer’s." Check out her feature and then take the pledge to use your brain to #WipeOutAlz.


​​Alz4Kidz  is a two-part handbook to teach kids about Alzheimer’s disease.

Part One of this handbook is specially designed for caregiving youth grades 6-8. Based off the five lessons of HBO’s The Alzheimer’s Project: Grandpa, Do You Know Who I Am? with Maria Shriver, Alz4Kidz can be used as an accompanying resource or as a stand-alone teaching tool. Readers will learn everything from how to best interact with a grandparent who has Alzheimer’s, to the science behind the disease, to ways they can help the cause, and much more.

The shriver report 

A Woman’s Nation Takes on Alzheimer’s is a comprehensive, multi-disciplinary anthology of every facet of Alzheimer’s disease—medical, sociological, political and economic. The academic core of the report is composed of expert reviews of issues and trends, with analysis backed by the nationwide Alzheimer’s Association Women and Alzheimer’s Poll of 3,118 adults, including more than 500 Alzheimer’s caregivers.

But there’s more to Alzheimer’s than numbers. This report includes original photography by award-winning photojournalist Barbara Kinney and a kaleidoscope of personal essays. Contributors include Barbra Streisand, Terrell Owens, Soleil Moon Frye, ABC News “Nightline” anchor Terry Moran, CBS News correspondent Barry Petersen, former First Lady Laura Bush, President Ronald Reagan’s daughter Patti Davis, Alzheimer’s Study Group chairs Newt Gingrich and former Sen. Bob Kerrey, Secretary of Health and Human Services Kathleen Sebelius and Vice President Joe Biden. In addition, extraordinarily honest and moving essays by a diverse group of Americans—including teenage caregivers and women who are living with the disease today— further illustrate the toll Alzheimer’s is taking on the American landscape.