CAUSES

 

ALZHEIMER'S ADVOCACY 

national activist

Throughout her childhood, Alissa's grandmother, Mary Fran Anderegg, struggled with Alzheimer's disease. While growing up, Alissa quickly realized that the Alzheimer's community lacked a voice for what she now calls "the forgotten generation" of Alzheimer's: the child caregivers. Since 2006, she has become one of the nation's leading Alzheimer’s advocates with her mission to encourage young caregivers to educate, empower and activate for the cause.

During her 20+ years of Alzheimer’s activism, Alissa has shared her story to millions across the world in the Emmy-winning HBO documentary The Alzheimer’s Project, The New York Times, The Los Angeles Times, AOL, The Huffington Post, National Public Radio, Larry King Live, a nationwide keynote speaking tour, and as a contributor to the book  Alzheimer’s In America: The Shriver Report on Women and Alzheimer’s alongside former President Joe Biden, Barbra Streisand, former First Lady Barbara Bush, and more.

In 2016, as a result of a decade-long partnership with Maria Shriver's Alzheimer's advocacy efforts, Alissa was selected as a Woman Leader of the national campaign, Maria Shriver's Wipe Out Alzheimer's Challenge. In 2017, it was rebranded as The Women's Alzheimer's Movement in partnership with the Alzheimer's Association, My Brain, and A Woman's Nation. Alissa and leading advocates from around the world including Anne Romney, Brooke Shields, Shonda Rhimes and Senator Barbara Mikulski were featured as "inspirational women who have stood on the front lines of the fight against Alzheimer’s."

Throughout her years of advocacy, Alissa has lobbied in Washington D.C. for the Alzheimer's Association, used her social media expertise to support the association's inaugural Social Media Leadership Team, and donated her time as an Executive Board Member and Director of Marketing for The Youth Movement Against Alzheimer’s (acquired by Seth Rogen’s Hilarity for Charity). As Miss World America, she served as a National Champion for CaringKind: The Heart of Alzheimer’s Caregiving, and in 2026 she was chosen as one of the organization’s 100 Women of Impact. For the past several years, Alissa has also served as a member of the Alzheimer’s Drug Discovery Foundation’s Young Professionals Committee and co-chaired various New York City events and galas benefitting Alzheimer’s research.

 
 

THE SHRIVER REPORT

contributing author

The Shriver Report: A Woman’s Nation Takes on Alzheimer’s is a comprehensive, multi-disciplinary anthology of every facet of Alzheimer’s disease—medical, sociological, political and economic. The academic core of the report is composed of expert reviews of issues and trends, with analysis backed by the nationwide Alzheimer’s Association Women and Alzheimer’s Poll of 3,118 adults, including more than 500 Alzheimer’s caregivers.

But there’s more to Alzheimer’s than numbers. This report includes original photography by award-winning photojournalist Barbara Kinney and a kaleidoscope of personal essays. Contributors include Barbra Streisand, Terrell Owens, Soleil Moon Frye, ABC News “Nightline” anchor Terry Moran, CBS News correspondent Barry Petersen, former First Lady Laura Bush, President Ronald Reagan’s daughter Patti Davis, Alzheimer’s Study Group chairs Newt Gingrich and former Sen. Bob Kerrey, Secretary of Health and Human Services Kathleen Sebelius and Vice President Joe Biden. In addition, extraordinarily honest and moving essays by a diverse group of Americans—including teenage caregivers and women who are living with the disease today— further illustrate the toll Alzheimer’s is taking on the American landscape."

 

OTHER NOTABLE EXPERIENCES

 

CARINGKIND 100 WOMEN OF IMPACT

HONOREE 2026

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ALZHEIMER’S DRUG DISCOVERY FOUNDATION

YOUNG PROFESSIONALS COMMITTEE MEMBER 2021-PRESENT

SOCIAL MEDIA SUBCOMMITTEE CO-LEAD 2021-2022

GALA CO-CHAIR 2025

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THE NEW YORK JUNIOR LEAGUE

MEMBER 2019-PRESENT

COMMITTEE VICE-CHAIR 2021-2025

NOMINATING COMMITTEE 2025-PRESENT

CARINGKIND: THE HEART OF ALZHEIMER’S CAREGIVING

NATIONAL CHAMPION 2021-PRESENT

FORGET-ME-NOT GALA AFTER PARTY CO-CHAIR 2022-2025

CARINGKIND x PAVÉ THE WAY FUNDRAISER CO-CHAIR 2024

FORGET-ME-NOT GALA COMMITTEE 2025

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DUKE ALUMNI ASSOCIATION

ALUMNI INTERVIEWER, 2017-PRESENT

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ALZHEIMER'S ASSOCIATION

NATIONAL ADVOCATE 2007-PRESENT

JUNIOR BOARD MEMBER 2016-2017

SOCIAL MEDIA LEADERSHIP TEAM MEMBER 2017-PRESENT,

ALZHEIMER'S IMPACT MOVEMENT (AIM) MEMBER 2018-PRESENT

ALZHEIMER'S CONGRESSIONAL TEAM MEMBER 2018-2020,

PURPLE AMBASSADOR 2021-PRESENT

 
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COCA-COLA SCHOLARS

NATIONAL SCHOLAR, 2012

ONE OF 250 SCHOLARS CHOSEN FROM A COMPETITIVE POOL OF 80,000+ APPLICANTS

WOMEN'S CONFERENCE

SPEAKER, 2010

OTHER SPEAKERS INCLUDED MARIA SHRIVER, OPRAH WINFREY, RUTH BADER GINSBURG & MICHELLE OBAMA

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THE YOUTH MOVEMENT AGAINST ALZHEIMER’S

ACQUIRED BY SETH ROGEN’S HILARITY FOR CHARITY;

DIRECTOR OF MARKETING/EXECUTIVE BOARD MEMBER 2018-2019

BOARD OF DIRECTORS 2021-2023

DUKE OF EDINBURGH

INTERNATIONAL BRONZE MEDAL, 2015

PRESENTED BY THE BRITISH ROYAL FAMILY FOR COMMITMENT TO SERVICE AND EXPLORATION

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DUKE UNIVERSITY

ADMISSIONS AMBASSADOR 2013-2016

DUKE WOMEN'S CENTER NATIONAL IMPACT AWARD 2015

STUDENT AMBASSADOR TO TAIWAN MINISTRY OF HEALTH 2015

DUKE ASSOCIATION FOR BUSINESS ORIENTED WOMEN 2013-2016

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SCREEN ACTORS GUILD

MEMBER 2005-PRESENT

SAG AWARDS NOMINATING COMMITTEE MEMBER 2017

 
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TOWN OF DANVILLE

MAYOR’S AWARD OF MERIT, 2011

SPECIAL AWARD FROM THE CITY FOR “DEDICATED SERVICE TO THE TOWN OF DANVILLE” FOR WORK WITH ALZHEIMER’S ACTIVISM

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CHILDREN'S MIRACLE NETWORK HOSPITALS

GOODWILL AMBASSADOR, 2011-2018

4217.

NORDSTROM SCHOLAR

TEN4U SCHOLARSHIP RECIPIENT, 2012

IMEDIA FOUNDATION

ADVISORY BOARD MEMBER

CONFERENCE MODERATOR AND IMEDIA NOW HOST 2016-PRESENT

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CHICAGO COUNCIL ON GLOBAL AFFAIRS

MEMBER, 2017-2018

YOUNG ICONS

YOUNG ICON, 2011

RECOGNIZED AS ONE OF "THE BRIGHTEST AND BEST OF AMERICA'S YOUTH" ON NATIONAL TV PROGRAM